Daughter of Helen, who has dementia.
Which of these best describes you?
I am family - Our Landscape You order the things On your bedside table Kleenex box on far right Phone anchoring the left Even though you hear it ring Sometimes when it doesn't And other times you answer When your conversation Is all jumbled and makes little sense I lose my patience with you Why must you ring your bell Summoning me like the hired help And remind me daily Of how the hired help Manages your household better When they are here And I'm not Why can't we rewind To a time When you were just my mom My confidant My encourager When you always remembered That I'm your daughter I want to go back To the special times we shared Before dementia clouded Our landscape © 12-30-15
If your loved one was experiencing signs of dementia, would you keep it a secret?
Yes - I want others to know so they don't wonder what's wrong like I did for so long.
Who are you here for?
The thing I miss most is...
- Having a heart-to-heart conversation with my mother any time I want. Sometimes she can still do this; sometimes she can't. One time recently I called her, and she thought I eas het mom.
I first began to worry when...
- Mom was agitated much of the time.
The hardest part of my today was...
- Knowing she will never be the same again.
The best part of my day today was...
- Having a fairly clear conversation with her.
I didn't consider myself a caregiver until I had to...
- Help her go to the bathroom.
I have found the most support from...
- My brother.
I have felt most abandoned by...
- My mom on days when she doesn't know who I am.
The thing that would surprise most people about my day is...
- Wondering if I will have dementia soon.
The funniest thing that has happened was...
- When Mom spent an entire 45 minute phone conversation relating events from"The Andy Griffith Show."
The gift of being a caregiver is...
- I can take care of Mom. She took care of me.